Data analytics in healthcare is fundamentally broken and mistakenly focused on academic pursuit rather than actionable insight, Dr Ben Goldacre has told a packed audience at Digital Health Rewired.
Dr Goldacre delivered one of the opening keynotes at the event, which is taking place at London’s Olympia.
The clinician, academic, author and journalist – who runs the University of Oxford’s DataLab – argued that data needs to be used to “tap people on the shoulder” and alert them to potentially sub-optimal practice.
But he suggested that the competitive funding available for healthcare analytic research is too often spent on “20th century academic models, people doing trials, people doing cohort studies, all focused on producing academic papers”.
While he said he is one of those who bids for and wins that money, he added that solely employing this sort of model “is not the best way to spend public resources in using data to spot and fix problems in healthcare”.
“It creates bad incentives, it creates handwaving statements about how we’re going to have impact on patient care at some vague point – ‘We’re developing this amazing algorithm, it’s going to really powerful at some point in the future’.”
Dr Goldacre – who chairs Matt Hancock’s Healthtech advisory board – also contended the prevailing system creates an unhelpful “snootiness” around implementation of analytics.
“You will learn 1,000 times more trying to ship tools to people who actually use it and listening to their feedback than you ever will sitting delivering one paper that tales a year to get published in a journal,” Dr Goldacre argued.
“Implementation is all that matters; shipping stuff to the coalface and showing it improves patient care.”
He continued: “Why, when the secretary of state for health and social care – who for the first time ever is a proper nerd, properly interested in this sort of stuff – is casting around for examples of integrating examples of stuff being done with data, why aren’t there five or 10 or 20 departments of clinical informatics going: ‘Here it all is, here are the things we’ve shipped’?
“I think the answer is that all of the resource that goes to the people who are capable of innovating in universities goes on producing boring, old fashioned academic papers.”
He suggested the situation was compounded by a closed approach to data, meaning those who are working on tools which offer immediate insight are stymied in their efforts.
“People think that the blockages to delivering this kind of thing are technical. That is not true. There are not technical barriers to what we want to ship, there is no limitation to computing power, there is no barrier to us accessing the data that is in any sense technical. Every blockage that we encounter is a cultural barrier.”
He pointed to a wealth of data that exists but that “we’re not allowed to touch, or it’s shared badly”.
“AHSNs [academic health science networks] and CSUs [commissioning support units] are, I’m sure, stuffed full of people doing absolutely fantastic analytic work, but I’m not allowed to see any of it. None of it is documented,” Dr Goldacre added.
And the problem persisted with national datasets, he said. That notably includes hospital medicines usage data, the model hospital work being led by Lord Carter to help improve efficiency and productivity, and the Getting it Right First Time (GRIFT) programme which aims to remove unwarranted clinical variation.
He expressed particular concern that the Model Hospital and GRIFT data analysis was being outsourced by the NHS, “so the system doesn’t learn from it”.
“Outsourcing your analytics is like outsourcing your central nervous system,” Dr Goldacre argued. “It’s an insane thing to do and yet it has become the norm.”
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